Our Special Families

Who We Have Helped

The Foundation could not do what we do without the many people who have participated in our events and have donated. Every time we get to help a family it makes the family very happy. Thank you all again for the help!!!

If you know a family that needs some assistance we would love to reach out to them. Please feel free to fill out the form below to nominate a family.

https://forms.gle/ziA1bTgeczb37hHz8

Mason and Colton Banas

Meet Mason and Colton Banas. The twins were born at 34 weeks, and spent a month in the NICU. Mason had his first seizure followed by Colton. Since they both have had an increase in prolonged seizures the the family did genetic testing. Results of the testing led to the diagnosis of Dravet Syndrome. Dravet syndrome is an intractable developmental and epileptic encephalopathy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. Dravet syndrome is a rare disease, with an estimated incidence rate of 1:15,700. With the help from the foundation the boys received a seizure monitor to help their parents take care of them.

Lani Mae

Meet Lani Mae. This beautiful little girl came into this world after only 28 weeks. Her mom had Placenta Previa Placenta Accreeta, which is where her placenta had embedded itself into my interior wall and was also trying to tear itself out at the same time, causing mom to bleed out and Lani swallow my blood clots as she learned how to practice swallowing in the womb. After being born Lani failed extubation twice and the family made the decision that a Trach was the best route. Lanie came home after 389 days in the NICU and with the help of the foundation we were able to build a ramp to help Lani and her family get in and out of the house much easier. 

Benton Recer

Benton was diagnosed with an extremely rare genetic defect called HNRNPU Related Disorder at the age of two. There are less than 100 known cases in the world! HNRNPU causes him to have epilepsy, developmental delays, autism, hypotonia, possible kidney dysfunction, cardiac malformation (which has been surgically repaired) and there are links to certain types of cancer. The foundation was able to help the Recer family with the purchase of a SAMi seizure monitor. 

Snowflake Village

Over Christmas in 2023 the foundation and its amazing followers raised money for and collected to toys to donate to Snowflake Village at St. Louis Children's Hospital. With the funds collected we were able to purchase gifts that parents could pick out for their children who are in the hospital during the holidays. We had a whole truck load of toys to donate and hope that some of the sick kiddos in the hospital were happy on Christmas morning.

Luella Cockrill

These are the best days when we get to meet new people and help them through the foundation. Luella Cockrill was diagnosed with a rare condition called Wolf Hirschhorn Syndrome just a short 15 days after being born. She would spend 303 days in the NICU until she was able to come home. Now she has a trach and a feeding tube but loves being home with her mom and dad and brothers. The foundation was able to help purchase supplies for Luella to help her with her preschool work at home. These supplies will make Luella’s day a little easier while she grows!

Ava Crawford

Ava Crawford is first grader at St. Peters Elementary where she is a proud member of the choir. Ava was diagnosed with ARFID, Avoidant Restrictive Food Intake Disorder in the summer of 2022. She's had her button for 4 months, she previously had NG tube. She's struggled with food intake but doesn't let it stop her. She has a great spirit, is a great listener, she loves to dance, do gymnastics and play Roblox with her friends. To make things as easy as we can the foundation purchased an extra food pump for Ava the she can transport to and from school and make her life just a little easier!

Jerzi Armstrong

Jerzi Armstrong was a perfectly healthy young lady until she fell ill.  Jerzi was admitted into the hospital with a serious heart condition. In 2022 she underwent an emergency heart transplant. Jerzi and her family have been contributors to the foundation since the start. It was nice to be able to give back and help them in just a little way. The foundation helped with some medical bills and surprised her with some things to get her ready for the new school year.  

Grant & Sebastian

Grant & Sebastian are ninw year old twins who absolutely love life and include as many people as they can in their journey. They both have a rare genetic condition called Propionic Acidemia that affects many different aspects of their lives and parts of their bodies. With the help of our trivia night we were able to help the boys with swimming lessons. Swimming is one thing that the boys love to do and now they can do it safely.

Arie Oler and Oakley

Arie Oler is a strong little girl who went to the same school as Jordyn. Arie suffers from spastic quad CP as well as seizures. Arie's mom, Ayla Oler, and Nichole quickly became friends and would see each other everyday at school pickup. Our kids loved seeing Arie. As a foundation we were able to help pay for the training of Arie's service dog, Oakley.

Baking Memories for Kids

Jordyn was gifted a trip of a lifetime from an unreal organization but unfortunately she was not able to go because she passed. But as a family we never would forget, as the rest of the family got to go in her memory. A group of family members and friends all teamed up for a bake sale to help pay for a family to go on a trip of a lifetime.

Camryn Coughlin

Camryn was 7 years old when he was diagnosed with adrenoleukodystrophy. There is no cure for this disease. Camryn was in need of a new chair that he could sit in and relax. And of course the insurance company told the family he was not eligible for a new one. That is where JMMF came in. We were so excited to be able to deliver Camryn's new chair and we hope he loves it.

Christina

Through our partnership with the Adam Morgan Foundations Apple A Day Program we were able to help buy Christina a new iPad. Her iPad will help her communicate with others and assist her get through the day a little easier.

Zephany

Through our partnership with with the Adam Morgan Foundation and the Apple A Day Program we were able to help purchase an iPad for Zephany. This iPad will help her in her everyday life with communications and many other things.

Ashley Witthohn

Please meet this beautiful little girl, Ashley Witthohn. Ashley has been diagnosed with quadriplegic dystonic/spastic cerebral palsy. She has an identical twin and they were born at 31 weeks. Ashley was in need of a new wheelchair. And of course, insurance denied it. JMMF was able to help the family get that new wheelchair. 

Colton Olson

What an exciting day. We helped our first family today!! We delivered Colton a fancy bath chair to make bath time easier for him and his parents. It was fun to see our kids interact with him and how excited he was for his chair. I know Jordyn was watching us smiling as we help families in her honor. This was just the first of many families we will help!!!